Google Site Map of NPCF
Site Feeds
Pages
- Home
- Archives
- HHR Intro
- HHR Signup 2013
- Privacy Policy
- Site Map
- Thank You For Subscribing
- The Hill 2012
- Home
- About Us
- Donate
- Blog
- Niemann-Pick Type C
- Contact Us
Categories
- About Us
- Alzheimer's
- Blog
- Cyclodextrin
- Dementia
- Events
- FDA
- Featured Blog
- featured_slider
- Fundraising
- Hospital Hill Run
- News
- Rare Disease
- Research
- Social Services
- Therapies
- Treatments
- Videos
- What is NPC
- Zavesca (Miglustat)
Monthly Archives
- August 2014
- February 2014
- October 2013
- February 2013
- December 2012
- October 2012
- May 2012
- March 2012
- February 2012
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- May 2011
- April 2011
- January 2011
- December 2010
- November 2010
- October 2010
- September 2010
- August 2010
- July 2010
- June 2010
- May 2010
- April 2010
- March 2010
- February 2010
- December 2009
- November 2009
- October 2009
Tags
- Actelion
- Addi & Cassi Hempel
- adrenoleukodystrophy
- ALD
- Alzheimer's
- Brisan & Parker Stults
- Brisan Stults
- Causes
- Cholesterol
- Cyclodextrin
- Dementia
- Fatal
- FDA
- Fundraiser
- Fundraising
- Gene Therapy
- Inc
- Jackie Imrie
- James E Wraith
- Jennifer Stults
- Kansas City
- Lysosomal Storage Disease
- Michael & Jennifer Stults
- Michael G. Stults
- Miglustat
- Missouri
- Niemann-Pick
- Niemann-Pick Children's Fund
- Niemann-Pick Disease
- Niemann-Pick Type C
- Niemann-Pick Type C Disease
- NNPDF
- NP-C
- NPC
- NPCF
- Parker Stults
- Rare
- Rare Disease
- Rare Diseases
- Research
- Science NOW
- Therapies
- Vegas Casino Night
- Zavesca
- Zevesca
All Articles
- New Blood Test for Niemann-Pick Type C
1-Aug-14 • Michael Stults • 0 Comment - World Rare Disease Day 2014
23-Feb-14 • Michael Stults • 0 Comment - 12th Annual Niemann-Pick Disease Awareness Month
2-Oct-13 • Michael Stults • 0 Comment - 2013 Hospital Hill Run Discount (40th Annual)
17-Feb-13 • Michael Stults • 0 Comment - Happy Holidays
28-Dec-12 • Michael Stults • 0 Comment - 2012 Niemann-Pick Disease Awareness Month
6-Oct-12 • Michael Stults • 0 Comment - Road To Discovery 2012 – Greg Crawford
6-Oct-12 • Michael Stults • 0 Comment - Discount Deadline Update for Hospital Hill Run
17-May-12 • Michael Stults • 0 Comment - 20th Annual Family & Medical Conference
19-Mar-12 • Michael Stults • 0 Comment - Rare Disease Day 2012
28-Feb-12 • Michael Stults • 0 Comment - Happy Valentines Day!
7-Feb-12 • Michael Stults • 0 Comment - 2012 Hospital Hill Run (discount)
6-Feb-12 • Michael Stults • 0 Comment - NIH Clinical Trial of Cyclodextrin Update
16-Dec-11 • Michael Stults • 0 Comment - Vegas Casino Night Update
19-Nov-11 • Michael Stults • 0 Comment - Matthew Lesko in Town For Vegas Casino Night
4-Nov-11 • Michael Stults • 0 Comment - Vegas in Kansas City Casino Night Fundraiser 11-11-11
17-Oct-11 • Michael Stults • 0 Comment - The Doctors TV Show | Niemann-pick Type C disease | Gavin Lopez
14-Sep-11 • Michael Stults • 1 Comment - 2011 NNPDF Medical & Family Conference
17-Aug-11 • Michael Stults • 0 Comment - Midwest Classic Tickets fore Charity Event
19-May-11 • Michael G Stults • 0 Comment - Potential Breahthrough in Niemann-Pick Type C Research
8-Apr-11 • Michael G Stults • 0 Comment - About Us
5-Apr-11 • Michael G Stults • Comments Off on About Us - Not So Rare | Rare Disease Day February 28 2011
24-Jan-11 • Michael G Stults • 1 Comment - Welcome! Come Check Out Our Blog
22-Jan-11 • Michael G Stults • 1 Comment - Video Project for Niemann-Pick Disease 2011
20-Jan-11 • Michael G Stults • 0 Comment - NNPDF COLLABORATIVE STUDY – KAREN QUANDT, RN, MN
8-Dec-10 • Michael G Stults • 1 Comment - Video: What is Niemann-Pick Type C disease? Can you share?
1-Dec-10 • Michael G Stults • 1 Comment - Desmopressin (DDVAP) Infusions for Platelet Dysfunction Disorder
29-Nov-10 • Michael G Stults • 0 Comment - We’re Famous, Almost | Palm Connections and Mashable
9-Oct-10 • Michael G Stults • 0 Comment - October is Niemann-Pick Disease Awareness Month 2010
6-Oct-10 • Michael G Stults • 1 Comment - Impact of Niemann-Pick Type C
21-Sep-10 • Michael G Stults • 0 Comment - Your Vote Can Save Lives | Rare Disease
5-Sep-10 • Michael G Stults • 0 Comment - MyDunkTank.com Dare By Steve Hugunin | Niemann-Pick Type C
31-Aug-10 • Michael G Stults • 1 Comment - Need Your Vote. 30 Under 30 Event
22-Aug-10 • Michael G Stults • 1 Comment - Promising Therapies for Niemann-Pick Type C Disease
9-Jul-10 • Michael G Stults • 1 Comment - 37th Annual Hospital Hill Run
13-Jun-10 • Michael G Stults • 1 Comment - What is Niemann-Pick Type C?
9-Jun-10 • Michael G Stults • 0 Comment - Orphan Drug Designation for Cyclodextrin | NPC
23-May-10 • Michael G Stults • 1 Comment - Why refer to it as the “Childhood Alzheimer’s”?
16-May-10 • Michael G Stults • 1 Comment - Check out the Videos!
12-Apr-10 • Michael G Stults • Comments Off on Check out the Videos! - Canada Receives First Approved Treatment For Niemann-Pick Type C
10-Apr-10 • Michael G Stults • 1 Comment - Join Our Cause On Facebook!
27-Mar-10 • Michael G Stults • 3 Comments - Dementia in Our Kids – The Uninvited Thief
26-Mar-10 • Michael G Stults • 5 Comments - Why Rare Diseases OUR Important
21-Mar-10 • Michael G Stults • 6 Comments - FDA says Hold Off on Zavesca (Miglustat) approval.
16-Mar-10 • Michael G Stults • 0 Comment - Social Security Adds 38 New Medical Conditions that Qualify for Disability
13-Feb-10 • Michael G Stults • 0 Comment - UPDATE 2-US FDA panel backs new use for Actelion drug [Zavesca]
11-Feb-10 • Michael G Stults • 0 Comment - Historic FDA related drug advisory committee will meet | Zavesca
22-Dec-09 • Michael G Stults • 0 Comment - Today, there is no cure or effective treatment
26-Nov-09 • Michael G Stults • 1 Comment - New therapies – Niemann-Pick type C disease
21-Nov-09 • Michael G Stults • 0 Comment - Gene Therapy Halts Brain Disease in Two Boys
25-Oct-09 • Michael G Stults • 0 Comment - Dementia. It changes your life.
24-Oct-09 • Michael G Stults • 0 Comment