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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for the ‘Events’ Category

World Rare Disease Day 2014

World Rare Disease Day 2014

World Rare Disease Day is an event that occurs annually every February 28th, assuming it isn’t leap year! Essentially the last day of February. The goal behind the movement is to raise awareness about rare diseases and promote improved access to treatments and medical opportunities for individuals […]

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2013 Hospital Hill Run Discount (40th Annual)

2013 Hospital Hill Run Discount (40th Annual)

The Niemann-Pick Children’s Fund is proud to announce it’s participation in the 40th annual Hospital Hill Run in downtown Kansas City, Missouri as a Sliver Charity Partner! HHR has been giving local charities opportunities over the last handful of years to use this stage that is expecting […]

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20th Annual Family & Medical Conference

20th Annual Family & Medical Conference

This year is the National Niemann-Pick Disease Foundation’s 20th year of providing services to families affected by Niemann-Pick Disease, raising awareness, and the crucial part of funding for research. This special occasion will be held in Nashville, Tennessee on August 16-19th! More details will develop here in […]

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2012 Hospital Hill Run (discount)

2012 Hospital Hill Run (discount)

The 39th Annual Hospital Hill Run presented by Price Chopper is taking place on June 2, 2012 and the Niemann-Pick Children’s Fund has a great opportunity to help promote awareness of Rare Disease! We are looking for participants for the UMKC School of Medicine 5k Run\ Walk, […]

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Vegas Casino Night Update

Vegas Casino Night Update

On November 11, 2011 we held our Vegas Casino Night at the Hilliard Art Gallery here in downtown Kansas City. The weather was beautiful for a November day opposed to having snow, rain, and sleet! We all had prepared for this big day and were brought together […]

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