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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for the ‘Fundraising’ Category

2012 Niemann-Pick Disease Awareness Month

2012 Niemann-Pick Disease Awareness Month

Can you believe it….it is already October!?!? This year marks 20 years and counting of the NNPDF making strides in our rare disease community towards a common goal. We have to remain thankful for those families who early on came together to get this off the ground! […]

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Road To Discovery 2012 – Greg Crawford

Road To Discovery 2012 – Greg Crawford

Dean Greg Crawford is an amazing individual. If you asked if he felt amazing about what he does for the Niemann-Pick Community, he’d possibly beg to differ because of his humble attitude. Over this summer, Greg has ventured on a coast to coast tour to help raise […]

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20th Annual Family & Medical Conference

20th Annual Family & Medical Conference

This year is the National Niemann-Pick Disease Foundation’s 20th year of providing services to families affected by Niemann-Pick Disease, raising awareness, and the crucial part of funding for research. This special occasion will be held in Nashville, Tennessee on August 16-19th! More details will develop here in […]

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Vegas Casino Night Update

Vegas Casino Night Update

On November 11, 2011 we held our Vegas Casino Night at the Hilliard Art Gallery here in downtown Kansas City. The weather was beautiful for a November day opposed to having snow, rain, and sleet! We all had prepared for this big day and were brought together […]

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Matthew Lesko in Town For Vegas Casino Night

Matthew Lesko in Town For Vegas Casino Night

Matthew Lesko who is TV’s best known personality who genuinely seeks to educate the American pubic about available grant opportunities, will be attending our Vegas Casino night on November 11, 2011 at the Hilliard Art Gallery. You may best know him as providing detailed information on how […]

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