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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Posts Tagged ‘Rare’

Road To Discovery 2012 – Greg Crawford

Road To Discovery 2012 – Greg Crawford

Dean Greg Crawford is an amazing individual. If you asked if he felt amazing about what he does for the Niemann-Pick Community, he’d possibly beg to differ because of his humble attitude. Over this summer, Greg has ventured on a coast to coast tour to help raise […]

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NNPDF COLLABORATIVE STUDY – KAREN QUANDT, RN, MN

Karen Quandt is the Board Chair for the NNPDF.org.  A few years back she was completing a study about neurodegenerative disease in family members of patients with Niemann-Pick Type C (NPC). There differently is a relationship between NPC and other diseases. At this given time ,the current […]

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Video: What is Niemann-Pick Type C disease? Can you share?

We have put together a short video of Brisan and Parker Stults to help raise awareness through social media outlets. The upcoming 2011 year should bring hopefully other insightful videos that can be shared with our friends, family, coworkers, and complete strangers. The whole object with any […]

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