A Rare Lysosomal Storage Disease

Archive for August 2010 Dare By Steve Hugunin | Niemann-Pick Type C

Wednesday August 25th Steve Hugunin’s hair line changed forever. Well maybe just for another 30 days! He participated with in raising money for the Niemann-Pick Children’s Fund in honor of my two sons Brisan and Parker Stults. He had two weeks to accomplish his mission. The […]

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Need Your Vote. 30 Under 30 Event

I’m very honored that me and my wife have been selected as one of the 30 people under the age of 30 who have contributed to our community in some manor. Although we feel we have a ton of work to accomplish, the Niemann-Pick Children’s Fund, Inc is dear to our heart. Our two oldest son’s Brisan and Parker Stults were diagnosed with a rare FATAL neurological disease called Niemann-Pick Type C Disease. Sometimes referred to as the “Childhood Alzheimer’s” because of the similar pathological features they share. They only have a childhood to live a lifetime.

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