A Rare Lysosomal Storage Disease

Archive for the ‘featured_slider’ Category

Welcome! Come Check Out Our Blog

Welcome! Make sure to stop by our Blog or subscribe to updates! We look forward to connecting with you. To read more posts:

Read more

We’re Famous, Almost | Palm Connections and Mashable

Niemann-Pick Children’s Fund was featured on through Palm Connections. This is huge because literally thousands upon thousands aggregate news and read these publications. A few months back I ran across an opportunity on Facebook to submit an application to be apart of Palm Connections. They wanted […]

Read more

Impact of Niemann-Pick Type C

Actelion Pharmaceuticals LTD produced a short video on two families and how Niemann-Pick Type C Disease has impacted their lives. Hollie Carter and Annie Pyne are featured in this video. They both are youngsters living with this disease. At first sight we all instantly start to evaluate […]

Read more

Promising Therapies for Niemann-Pick Type C Disease

In Rockville, MD on June 3-4th many of the researchers looking into different areas and avenues for Niemann-Pick Type C came together to discuss promising therapies. Although research is making progress, parents of NPC patients never feel that research is happening fast enough.

Read more

Join Our Cause On Facebook!

Help us spread the word about Niemann-Pick Type C! Join our cause on Facebook! Niemann-Pick Children’s Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

Read more