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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for November 2010

Desmopressin (DDVAP) Infusions for Platelet Dysfunction Disorder

Brisan and Parker Stults are our two eldest sons’. In combination with Niemann-Pick Type C disease they also have an underlying Platelet Dysfunction Disorder that when they bleed they have a severe delayed clotting time. Essentially the clot won’t stick and creates a very time consuming situation […]

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