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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for December 2010

NNPDF COLLABORATIVE STUDY – KAREN QUANDT, RN, MN

Karen Quandt is the Board Chair for the NNPDF.org.  A few years back she was completing a study about neurodegenerative disease in family members of patients with Niemann-Pick Type C (NPC). There differently is a relationship between NPC and other diseases. At this given time ,the current […]

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Video: What is Niemann-Pick Type C disease? Can you share?

We have put together a short video of Brisan and Parker Stults to help raise awareness through social media outlets. The upcoming 2011 year should bring hopefully other insightful videos that can be shared with our friends, family, coworkers, and complete strangers. The whole object with any […]

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