On November 11, 2011 we held our Vegas Casino Night at the Hilliard Art Gallery here in downtown Kansas City. The weather was beautiful for a November day opposed to having snow, rain, and sleet! We all had prepared for this big day and were brought together because of two special little men, Brisan and Parker Stults. They are living with what they sometimes refer to as the “Childhood Alzheimer’s” or lesser known as Niemann-Pick Type C Disease.
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Matthew Lesko who is TV’s best known personality who genuinely seeks to educate the American pubic about available grant opportunities, will be attending our Vegas Casino night on November 11, 2011 at the Hilliard Art Gallery. You may best know him as providing detailed information on how to apply for government grants that most people are unaware of due to the lack of publicity.
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November 11, 2011 marks a special day for the Niemann-Pick Children’s Fund. It will host the “Vegas in Kansas City Casino Night” from 7-11 pm at the Hilliard Gallery in downtown Kansas City. Will you be there to show your support?
The money raised from the Casino Night will help further the fight against a horrible fatal disease called Niemann-Pick Type C. NPC is the cells inability to metabolize cholesterol that stores fatty lipids in the brain, liver, spleen, and bone marrow causing a domino effect of neurological problems that lead ultimately to their untimely death. No cure. It’s a 100% FATAL. Continue Reading
Niemann-Pick Children’s Fund, Inc is proud to announce our partnership with the Midwest Classic’s Mr. Goodcents TICKETSFore CHARITY™ program. The Midwest Classic is a professional golf event on the PGA TOUR’s 2011Nationwide Tour schedule. It will be held in Overland Park, KS at The Nicklaus Golf Club at Lions Gate from August 15 – 21, 2011. Through the Mr. Goodcents TICKETS Fore CHARITY™ program the MidwestClassic will donate 100% of all ticket sales to local charities including the Niemann-Pick Children’s Fund, Inc. Please help support our mission by purchasing your tournament tickets online or by filling out the enclosed orderform (include form in newsletter if you like). If you purchase your tickets online, please be sure toselect Niemann-Pick Children’s Fund, Inc from the drop-down menu so that we will receive 100% of the ticket sale. Continue Reading
We have put together a short video of Brisan and Parker Stults to help raise awareness through social media outlets. The upcoming 2011 year should bring hopefully other insightful videos that can be shared with our friends, family, coworkers, and complete strangers. The whole object with any rare disease is to explain a message in the shortest amount of time to help create emotion. We all act upon our emotions and that has done an incredible amount of good in our society.
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