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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Posts Tagged ‘Niemann-Pick Children’s Fund’

Midwest Classic Tickets fore Charity Event

Midwest Classic Tickets fore Charity Event

Niemann-Pick Children’s Fund, Inc is proud to announce our partnership with the Midwest Classic’s Mr. Goodcents TICKETSFore CHARITY™ program. The Midwest Classic is a professional golf event on the PGA TOUR’s 2011Nationwide Tour schedule. It will be held in Overland Park, KS at The Nicklaus Golf Club […]

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Video: What is Niemann-Pick Type C disease? Can you share?

We have put together a short video of Brisan and Parker Stults to help raise awareness through social media outlets. The upcoming 2011 year should bring hopefully other insightful videos that can be shared with our friends, family, coworkers, and complete strangers. The whole object with any […]

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We’re Famous, Almost | Palm Connections and Mashable

Niemann-Pick Children’s Fund was featured on Mashable.com through Palm Connections. This is huge because literally thousands upon thousands aggregate news and read these publications. A few months back I ran across an opportunity on Facebook to submit an application to be apart of Palm Connections. They wanted […]

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October is Niemann-Pick Disease Awareness Month 2010

October is Niemann-Pick Disease awareness month! Just wanted to pass along what many of you might be aware of if your connected in the NPC community. The below is directly from NNPDF’s site. Please participate on 10-10-10 for a $10 donation online to the NNPDF. They are […]

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MyDunkTank.com Dare By Steve Hugunin | Niemann-Pick Type C

Wednesday August 25th Steve Hugunin’s hair line changed forever. Well maybe just for another 30 days! He participated with MyDunkTank.com in raising money for the Niemann-Pick Children’s Fund in honor of my two sons Brisan and Parker Stults. He had two weeks to accomplish his mission. The […]

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