We have put together a short video of Brisan and Parker Stults to help raise awareness through social media outlets. The upcoming 2011 year should bring hopefully other insightful videos that can be shared with our friends, family, coworkers, and complete strangers. The whole object with any rare disease is to explain a message in the shortest amount of time to help create emotion. We all act upon our emotions and that has done an incredible amount of good in our society.
Niemann-Pick Type C disease (NPC) doesn't send Christmas cards, celebrate birthdays, love you unconditionally nor does it bother to hold back in it's relentless attack on the bodies neurological mainframe. Can affected individuals live past their teenage years? Well sure…anything is possible. The cold truth is the earlier neurological symptoms present and accelerate, the increased likely hood that patients will have a shorten outcome of life. Very sad realization to come to. No survivor stories yet; it's fatal. Your help could change that.
[ Video link: http://bit.ly/egmBKX ]As your watching the video please think of creative ways you can help spread the message. It might not be monetarily but it could be through other random acts of kindness. Keep in mind that Niemann-Pick Type C holds a lot of valuable information that could unlock doors to other common diseases that are cholesterol related.
Thank you for taking time to read this post and watching our video.
You can find us on Facebook: Niemann-Pick Children's Fund
