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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for February 2012

Rare Disease Day 2012

Rare Disease Day 2012

February 29, 2012 is National Rare Disease Day. Even on leap year, we can make this day a special day! What isn’t so RARE about rare disease is the fact that it affects all of us. Although that sounds like a vague statement, let’s think about this […]

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Happy Valentines Day!

Happy Valentines Day!

Happy Valentines Day from the Niemann-Pick Children’s Fund! Each and every holiday whether that is Christmas or Valentines day, we ought to seek out and remember the basic principles of each of those days. The “love” and “thanks” that is part of the root meaning should reminds […]

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2012 Hospital Hill Run (discount)

2012 Hospital Hill Run (discount)

The 39th Annual Hospital Hill Run presented by Price Chopper is taking place on June 2, 2012 and the Niemann-Pick Children’s Fund has a great opportunity to help promote awareness of Rare Disease! We are looking for participants for the UMKC School of Medicine 5k Run\ Walk, […]

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