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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for 2012

Happy Holidays

Happy Holidays

We wanted to wish everyone a fantastic celebration of holidays at this time of the year! 2013 is just right around the corner and for many in the rare disease community they are reminded that hope and time may not be on their side. Take extra time […]

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2012 Niemann-Pick Disease Awareness Month

2012 Niemann-Pick Disease Awareness Month

Can you believe it….it is already October!?!? This year marks 20 years and counting of the NNPDF making strides in our rare disease community towards a common goal. We have to remain thankful for those families who early on came together to get this off the ground! […]

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Road To Discovery 2012 – Greg Crawford

Road To Discovery 2012 – Greg Crawford

Dean Greg Crawford is an amazing individual. If you asked if he felt amazing about what he does for the Niemann-Pick Community, he’d possibly beg to differ because of his humble attitude. Over this summer, Greg has ventured on a coast to coast tour to help raise […]

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Discount Deadline Update for Hospital Hill Run

Hello everyone! Tomorrow will be the last day that the Niemann-Pick Children’s Fund can offer the 20% discount code for the 39th annual Price Chopper Hospital Hill Run. In preparation in ordering your shirts, we need to make this the final day. If you haven’t signed up, […]

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20th Annual Family & Medical Conference

20th Annual Family & Medical Conference

This year is the National Niemann-Pick Disease Foundation’s 20th year of providing services to families affected by Niemann-Pick Disease, raising awareness, and the crucial part of funding for research. This special occasion will be held in Nashville, Tennessee on August 16-19th! More details will develop here in […]

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