A Rare Lysosomal Storage Disease

Happy Holidays

Happy Holidays

We wanted to wish everyone a fantastic celebration of holidays at this time of the year! 2013 is just right around the corner and for many in the rare disease community they are reminded that hope and time may not be on their side. Take extra time in the upcoming days and spend that quality time with your loved ones!

We'll see you on the flip side in 2013! Thank  you for all your support!

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