A Rare Lysosomal Storage Disease

2012 Niemann-Pick Disease Awareness Month

2012 Niemann-Pick Disease Awareness Month

20th anniversary logo of the NNPDFCan you believe it….it is already October!?!? This year marks 20 years and counting of the NNPDF making strides in our rare disease community towards a common goal. We have to remain thankful for those families who early on came together to get this off the ground!

Every year October is set aside as the National Niemann-Pick Disease Awareness Month. Many families in and outside of the disease community, focus on raising valuable dollars used towards the goals of the NNPDF to find a cure for Niemann-Pick Disease.

“Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.”

Dale Carnegie

I am glad you asked… here are some ideas on how you can help us! 🙂

Top 5 Easy Ideas:

These ideas are simple and quick ways to raise awareness of Niemann-Pick Disease and to start a conversation with those who may have never heard of it before.

1. Use the NNPDF's 20th Anniversary logo on your email signature, your Facebook page, your blog, etc. JPG

2. Distribute PERSEVERE wristbands to 20 friends, family members and co-workers. Order form

3. Purchase a PERSEVERE window decal and display it on your vehicle.

4. Hand out NNPDF brochures to 20 people who have never heard of the disease before. NPC   ASMD Order form

5. Display a poster about Niemann-Pick Disease at your workplace, church or organization's meeting room. Order form w/pics

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