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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Posts Tagged ‘Rare Disease’

12th Annual Niemann-Pick Disease Awareness Month

12th Annual Niemann-Pick Disease Awareness Month

Each year October is set aside to have a focal point of Niemann-Pick Disease Awareness Month! The National Niemann Pick Disease Foundation has been promoting this the last 12 years to help create buzz and awareness about this horrible disease. Along with families affected by Niemann-Pick, people […]

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Rare Disease Day 2012

Rare Disease Day 2012

February 29, 2012 is National Rare Disease Day. Even on leap year, we can make this day a special day! What isn’t so RARE about rare disease is the fact that it affects all of us. Although that sounds like a vague statement, let’s think about this […]

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Matthew Lesko in Town For Vegas Casino Night

Matthew Lesko in Town For Vegas Casino Night

Matthew Lesko who is TV’s best known personality who genuinely seeks to educate the American pubic about available grant opportunities, will be attending our Vegas Casino night on November 11, 2011 at the Hilliard Art Gallery. You may best know him as providing detailed information on how […]

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Vegas in Kansas City Casino Night Fundraiser 11-11-11

Vegas in Kansas City Casino Night Fundraiser 11-11-11

November 11, 2011 marks a special day for the Niemann-Pick Children’s Fund. It will host the “Vegas in Kansas City Casino Night” from 7-11 pm at the Hilliard Gallery in downtown Kansas City. Will you be there to show your support? The money raised from the Casino […]

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The Doctors TV Show | Niemann-pick Type C disease | Gavin Lopez

The Doctors TV Show | Niemann-pick Type C disease | Gavin Lopez

Gavin and His Mother’s Heartbreaking Story Kristen and Fernando Lopez have 3 children from Little Elm, Texas. Gavin there oldest son has Niemann-Pick Type C disease. Recently they were on the TV show The Doctors talking about their guilt about having a child with Niemann-Pick Type C. […]

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