A Rare Lysosomal Storage Disease

October is Niemann-Pick Disease Awareness Month 2010

October is Niemann-Pick Disease Awareness Month 2010

October is Niemann-Pick Disease awareness month! Just wanted to pass along what many of you might be aware of if your connected in the NPC community. The below is directly from NNPDF's site.

Please participate on 10-10-10 for a $10 donation online to the NNPDF. They are truly doing some great things and we are thankful to be able to have them around.

Take the NPD 10 – 10 – 10  Challenge!
Please Help Raise Awareness for Niemann-Pick Disease

Intriguing dates such as 10/10/10 don’t come around all that often, and it seems fitting to proactively observe this once-in-a-lifetime occasion, especially since it falls during

October National Niemann-Pick Disease Awareness Month!

Participating in the NNPDF Central Office Challenge and showing support for the many families coping with Niemann-Pick Disease is one simple way you can mark the day by making a positive difference.   With just a few minutes of your time, you can help raise awareness and funding for all whose lives are affected and cut short by Niemann-Pick Disease.

Our 10-10-10 Challenge is to get 300 people to share information about Niemann-Pick Disease with 10 other people, via email, Facebook, Twitter, or other means (even via the hospitable old-fashioned way, face-to-face!).

Spreading the word about this rare disease is key to raising the essential funding for research which will find the treatments and cure we all work fervently toward, and to providing important family services for those who rely on us.

Here are some simple ways you can help families affected by Niemann-Pick Disease on 10-10-10:

  1. Create awareness of NPD by forwarding this message to 10 (or more) people in your email address book.
  2. Post this message (or your own message about Niemann-Pick Disease) to your Facebook page or blog.  Post a link to the NPD Awareness Facebook page (click the Facebook icon on the NNPDF Home page at
  3. “Tweet” about NPD and share the NNPDF Web site address:
  4. Take a group of friends out for coffee or dessert.  Tell them about NPD and the devastating effect it has on families.  (We will be happy to supply newly updated brochures for your use, just contact us.)
  5. Donate $10 for NPD on 10-10-10 and encourage your friends and family to do the same.  Most of us spend at least $10 a week on discretionary items (snacks, soda, a movie, fast food).  Ten dollars doesn’t seem like a whole lot of money, but when many people each give ten bucks, it adds up!  Donations may be mailed to the address above, or made online via our Web site:
  6. Encourage 10 contacts to check out our NNPDF October Awareness Online Auction!  Bid high, bid often!
  7. Get a “leg up” on your holiday shopping by purchasing ten of the darling new 2011 Puppies Calendars, “Treasuring Each Day.”  These calendars raise funds for the NNPDF's essential research program and important Family Support Services.  For more details and to order, click here.

Thank you very much for your help and continued generosity, on 10-10-10 and always!
Those who live with the challenges of Niemann-Pick Disease need and truly appreciate your kindness and support, today and until the cure is found.  Together, we will Persevere in Our Quest for a Cure!

Together, we can make a difference!

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