A Rare Lysosomal Storage Disease

Vegas Casino Night Update

Vegas Casino Night Update

On November 11, 2011 we held our Vegas Casino Night at the Hilliard Art Gallery here in downtown Kansas City. The weather was beautiful for a November day opposed to having snow, rain, and sleet! We all had prepared for this big day and were brought together because of two special little men, Brisan and Parker Stults. They are living with what they sometimes refer to as the “Childhood Alzheimer's” or lesser known as Niemann-Pick Type C Disease.

Our turn out provided a great group of supportive people. Our grandiose visions were to have a huge event and pack the place out. Although that didn't even come close to happening, the feedback was incredible! This event was a step in the right direction to certainly build upon in the future!

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NBC Action News and Christina Medina were so very kind to come out to share a bit of our story with Kansas City. You can find the link below:

Grain Valley family fights to find a cure for rare disease

Matthew Lesko was a big hit and everyone loved his smiling personality! We appreciate you coming out Matthew!

Thank you to each and everyone of you for supporting us and our event whether that was donating an item, your time, or even just donating monetarily.

See you next time!

Niemann-Pick Children's Fund Volunteers

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