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A Rare Lysosomal Storage Disease
Contact: info@npcfund.org

Archive for the ‘Fundraising’ Category

Vegas in Kansas City Casino Night Fundraiser 11-11-11

Vegas in Kansas City Casino Night Fundraiser 11-11-11

November 11, 2011 marks a special day for the Niemann-Pick Children’s Fund. It will host the “Vegas in Kansas City Casino Night” from 7-11 pm at the Hilliard Gallery in downtown Kansas City. Will you be there to show your support? The money raised from the Casino […]

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Midwest Classic Tickets fore Charity Event

Midwest Classic Tickets fore Charity Event

Niemann-Pick Children’s Fund, Inc is proud to announce our partnership with the Midwest Classic’s Mr. Goodcents TICKETSFore CHARITY™ program. The Midwest Classic is a professional golf event on the PGA TOUR’s 2011Nationwide Tour schedule. It will be held in Overland Park, KS at The Nicklaus Golf Club […]

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MyDunkTank.com Dare By Steve Hugunin | Niemann-Pick Type C

Wednesday August 25th Steve Hugunin’s hair line changed forever. Well maybe just for another 30 days! He participated with MyDunkTank.com in raising money for the Niemann-Pick Children’s Fund in honor of my two sons Brisan and Parker Stults. He had two weeks to accomplish his mission. The […]

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Need Your Vote. 30 Under 30 Event

I’m very honored that me and my wife have been selected as one of the 30 people under the age of 30 who have contributed to our community in some manor. Although we feel we have a ton of work to accomplish, the Niemann-Pick Children’s Fund, Inc is dear to our heart. Our two oldest son’s Brisan and Parker Stults were diagnosed with a rare FATAL neurological disease called Niemann-Pick Type C Disease. Sometimes referred to as the “Childhood Alzheimer’s” because of the similar pathological features they share. They only have a childhood to live a lifetime.

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37th Annual Hospital Hill Run

On June 5, 2010 Children’s Mercy Hospital had their 37th annual Hospital Hill Run that bears a lot of legacy in it’s longevity and fundraising for CMH! This year I decided that I wanted to participate in the run for Brisan and Parker but for future events […]

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