November 11, 2011 marks a special day for the Niemann-Pick Children’s Fund. It will host the “Vegas in Kansas City Casino Night” from 7-11 pm at the Hilliard Gallery in downtown Kansas City. Will you be there to show your support? The money raised from the Casino […]
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Gavin and His Mother’s Heartbreaking Story Kristen and Fernando Lopez have 3 children from Little Elm, Texas. Gavin there oldest son has Niemann-Pick Type C disease. Recently they were on the TV show The Doctors talking about their guilt about having a child with Niemann-Pick Type C. […]
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Niemann-Pick Disease Conference On July 28th-30st the National Niemann-Pick Disease Foundation held their 19th annual Medical & Family Conference. It was a place where families who didn’t sign up to be in “the club” of Niemann-Pick Disease Types A, B, C gathered to connect with families and […]
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Niemann-Pick Children’s Fund, Inc is proud to announce our partnership with the Midwest Classic’s Mr. Goodcents TICKETSFore CHARITY™ program. The Midwest Classic is a professional golf event on the PGA TOUR’s 2011Nationwide Tour schedule. It will be held in Overland Park, KS at The Nicklaus Golf Club […]
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One thing that I’ve personally learned is not to get excited about many things when it comes to research for Niemann-Pick Type C. The job of PR firms and Press Releases are to generate buzz, hype, excitement, and positive feelings. Sometimes there are a lot of finite […]
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