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A Rare Lysosomal Storage Disease
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Posts Tagged ‘Advocacy’

Not So Rare | Rare Disease Day February 28 2011

Rare Disease Day 2011 Definition of Rare Disease: “A rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population.” (wikipedia) After all why would we refer to “rare disease” as rare when in fact we all are […]

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