A Rare Lysosomal Storage Disease

Posts Tagged ‘Niemann-Pick Type C Disease’

October is Niemann-Pick Disease Awareness Month 2010

October is Niemann-Pick Disease awareness month! Just wanted to pass along what many of you might be aware of if your connected in the NPC community. The below is directly from NNPDF’s site. Please participate on 10-10-10 for a $10 donation online to the NNPDF. They are […]

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Impact of Niemann-Pick Type C

Actelion Pharmaceuticals LTD produced a short video on two families and how Niemann-Pick Type C Disease has impacted their lives. Hollie Carter and Annie Pyne are featured in this video. They both are youngsters living with this disease. At first sight we all instantly start to evaluate […]

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Need Your Vote. 30 Under 30 Event

I’m very honored that me and my wife have been selected as one of the 30 people under the age of 30 who have contributed to our community in some manor. Although we feel we have a ton of work to accomplish, the Niemann-Pick Children’s Fund, Inc is dear to our heart. Our two oldest son’s Brisan and Parker Stults were diagnosed with a rare FATAL neurological disease called Niemann-Pick Type C Disease. Sometimes referred to as the “Childhood Alzheimer’s” because of the similar pathological features they share. They only have a childhood to live a lifetime.

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Promising Therapies for Niemann-Pick Type C Disease

In Rockville, MD on June 3-4th many of the researchers looking into different areas and avenues for Niemann-Pick Type C came together to discuss promising therapies. Although research is making progress, parents of NPC patients never feel that research is happening fast enough.

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What is Niemann-Pick Type C?

What is Niemann-Pick Type C Disease? View more presentations from Michael G. Stults.

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