A Rare Lysosomal Storage Disease

About Us

About Us

Niemann-Pick Children’s Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

Michael and Jennifer Stults who’s two eldest son’s Brisan and Parker were diagnosed with this rare neurodegenerative disease in August/September 2008 after years of aggravating doctor’s visits trying to understand what is wrong with their children, organized the Niemann-Pick Children’s Fund, Inc. The concept was simple, how do they do their part and help fight this monster of a disease? How do they give back? With like minded individuals and close friends they formed NPCF to bring hope and opportunity to families that uniquely understand these pressures that burden their lives every day.

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